{"id":241,"date":"2016-02-08T14:33:43","date_gmt":"2016-02-08T13:33:43","guid":{"rendered":"http:\/\/www.childrenpalliativecarecongress.org\/congress-2016\/?page_id=241"},"modified":"2022-03-10T11:50:12","modified_gmt":"2022-03-10T10:50:12","slug":"pre-congress-courses","status":"publish","type":"page","link":"https:\/\/www.childrenpalliativecarecongress.org\/congress-2022\/scientific-infos\/pre-congress-courses\/","title":{"rendered":"Pre-Congress Workshops"},"content":{"rendered":"<p><!--vcv no format--><\/p>\n<div class=\"vce-row-container\">\n<div id=\"el-218e929f\" class=\"vce-row vce-row--col-gap-30 vce-row-columns--top vce-row-content--top\" data-vce-do-apply=\"all el-218e929f\">\n<div class=\"vce-row-content\" data-vce-element-content=\"true\">\n<div id=\"el-f8c0d271\" class=\"vce-col\">\n<div class=\"vce-col-inner\" data-vce-do-apply=\"border margin background el-f8c0d271\">\n<div class=\"vce-col-content\" data-vce-element-content=\"true\" data-vce-do-apply=\"padding el-f8c0d271\">\n<div class=\"vce-text-block\">\n<div id=\"el-facae4f1\" class=\"vce-text-block-wrapper vce\" data-vce-do-apply=\"all el-facae4f1\">\n<p>In response to popular demand, four pre-congress workshops on different themes of significant interest have been scheduled.\u00a0 The workshops, lead by eminent International paediatric palliative care experts will run simultaneously on Wednesday the <strong>25<sup>th<\/sup> May 2022 from 8.30 to 16.30.<\/strong><\/p>\n<p>Please note that pre-conference workshops can only be booked <span style=\"text-decoration: underline;\"><span style=\"color: #333399;\"><strong><a style=\"color: #333399; text-decoration: underline;\" href=\"https:\/\/www.childrenpalliativecarecongress.org\/congress-2020\/subscribe\/\">online congress registration page <\/a><\/strong><\/span><\/span>in connection with the registration for the congress.<\/p>\n<p>Participation in the pre-congress workshops will be limited to a minimum of 30 and a maximum of 80 participants, places will be allocated on a first come first-served basis.<\/p>\n<p><em><strong>Registration for the pre-congress workshops closes on 8<sup style=\"font-family: inherit;\">th <\/sup>May 2022.<\/strong><\/em><\/p>\n<p><strong>Fees for Participants include:<\/strong><\/p>\n<ul>\n<li>Attendance in the selected workshop<\/li>\n<li>Refreshments and lunch<\/li>\n<\/ul>\n<table class=\"tableizer-table\">\n<tbody>\n<tr class=\"tableizer-firstrow\">\n<th>Pre-Congress Workshops Topics<\/th>\n<th>Duration<\/th>\n<th>Course Directors<\/th>\n<th>Cost until 15<sup style=\"font-family: inherit;\">th <\/sup><span style=\"font-family: inherit; font-size: inherit;\">February 2022<\/span><\/th>\n<th>Cost from 16<sup style=\"font-family: inherit;\">th <\/sup><span style=\"font-family: inherit; font-size: inherit;\">February<\/span>\u00a02022<\/th>\n<\/tr>\n<tr>\n<td><strong><em>Anticipation and Accompaniment in Perinatal Palliative Care <\/em><\/strong><\/td>\n<td>8hrs<\/td>\n<td>Aexandra Mancini\/Elvira Parravicini<\/td>\n<td>\u20ac 140<\/td>\n<td>\u20ac 190<\/td>\n<\/tr>\n<tr>\n<td><strong><em>Supporting families in distress or in crisis<\/em><\/strong><\/td>\n<td>8hrs<\/td>\n<td>Jan Aldridge<\/td>\n<td>\u20ac 140<\/td>\n<td>\u20ac 190<\/td>\n<\/tr>\n<tr>\n<td><strong><em>Symptom management in non-oncological children<\/em><\/strong><\/td>\n<td>8hrs<\/td>\n<td>Julie Hauer<\/td>\n<td>\u20ac 140<\/td>\n<td>\u20ac 190<\/td>\n<\/tr>\n<tr>\n<td><strong><em>Spirituality in PPC<\/em><\/strong><\/td>\n<td>8hrs<\/td>\n<td>Christina Puchalski<\/td>\n<td>\u20ac 140<\/td>\n<td>\u20ac 190<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p><strong>IT\u2019S NOT POSSIBLE TO CHANGE PRE-CONGRESS WORKSHOP ON THE DAY OF THE CONGRESS<\/strong><\/p>\n<p><strong>Title: <em>Anticipation and Accompaniment in Perinatal Palliative Care<\/em><em>\u00a0<\/em><br \/>\n<\/strong><strong>Date<\/strong>: 25<sup>th<\/sup> May 2022<br \/>\n<strong>Duration<\/strong>: 1-day (08.30 -16.30)<br \/>\n<strong>Coordinator<\/strong>: Alexandra Mancini Smith (supervision Elvira Parravicini)<br \/>\n<strong>Co presenters<\/strong>: Tara Kerr-Elliott, Chiara Locatelli, Charlotte Wool<br \/>\n<strong>Min Capacity<\/strong>: 30 pers. <strong>Max Capacity<\/strong>: 80 pers.<br \/>\n<strong>Description<\/strong>:\u00a0Perinatal detection of congenital anomalies leads to the identification of infants who are affected by life-limiting or life-threatening conditions with a potential short life expectancy. Perinatal palliative care offers a plan for improving quality of life of the infant and the family <strong>TOPICS: <\/strong>The current state of the science of perinatal palliative care; Essential elements of perinatal and neonatal palliative consult; Essential elements of a neonatal palliative and comfort care plan, including end-of-life care; Interdisciplinary collaboration and continuing care in the community. <strong>LEARNING OBJECTIVES: <\/strong>Identify the essential elements of prenatal and neonatal palliative consult; Identify newborns\u2019 basic needs and apply strategies to achieve a state of comfort for newborns with life-limiting or life-threatening conditions; Identify families\u2019 needs and apply strategies to achieve support when they have a newborn with a life-limiting or life-threatening condition; Identify mechanisms of care coordination within perinatal and neonatal palliative care across the continuum of care.\u00a0<strong>TEACHING METHOD:<\/strong> Lectures + interactive discussion<\/p>\n<p><strong>Title: <em>Supporting families in distress or in crisis<\/em><br \/>\n<\/strong><strong>Date<\/strong>: 25<sup>th<\/sup> May 2022<br \/>\n<strong>Duration<\/strong>: 1-day (08.30 -16.30)<br \/>\n<strong>Coordinator<\/strong>: Jan Aldridge<br \/>\n<strong>Co presenters<\/strong>: Poh-Heng Chong, Lorna Fraser<br \/>\n<strong>Min Capacity<\/strong>: 30 pers. <strong>Max Capacity<\/strong>: 80 pers.<br \/>\n<strong>Description<\/strong>: When children are not included in conversations about their serious or terminal condition it is usually done with good intent. However there is growing evidence that sensitive, age and experience appropriate information is helpful both for the child and their family.\u00a0This workshop will explore some of the challenges of communication for families and health professionals when a child is seriously ill. Through discussion, group work and sharing the knowledge of the leaders and participants, it will explore the development of skills in communication with the children themselves and ways in which families can be supported to have conversations with their children. \u00a0It will also address the challenges of resolving conflicting feelings between the family and health professionals about communication with the child about what is happening to them.\u00a0\u00a0As the role of a strong evidence base, alongside learning from clinical experience, is increasingly recognised in paediatric palliative care, a sub-group within this workshop may have the opportunity of one session to address issues around working with children, young people and parents as research partners at this significant time of challenge.<\/p>\n<p><strong>Title: <em>Symptom management in non-oncological children<\/em><br \/>\n<\/strong><strong>Date<\/strong>: 25<sup>th<\/sup> May 2022<br \/>\n<strong>Duration<\/strong>: 1-day (08.30 -16.30)<br \/>\n<strong>Coordinator<\/strong>: Julie Hauer<br \/>\n<strong>Co presenters<\/strong>: Mercedes Bernad\u00e1<br \/>\n<strong>Min Capacity<\/strong>: 30 pers. <strong>Max Capacity<\/strong>: 80 pers.<br \/>\n<strong>Description<\/strong>: <span style=\"font-size: 12pt;\">This session will focus on symptoms in children with diseases and injury of the central nervous system. Such children live with substantial symptom burden, with a significant impact on quality of life and health outcomes of the child and family. This session will focus on chronic symptoms generated by the altered nervous system, resulting in neuro-pain, autonomic dysfunction, dystonia and status dystonicus, altered sleep, and feeding intolerance. A general frame work will be discussed, given that such problems are <span style=\"color: #000000;\">without diagnostic tests to identify or distinguish one source from another, and are problems <\/span>without cure. A screening process and assessment tool, pending publication, will be presented. Such a tool is needed given that many of these problems lack diagnostic criteria. Parents also face many worries throughout this process; language strategies to assist with needed support will be discussed. Management strategies will focus on the greater challenges: medication titration, length of a medication trial, when to add a 2<sup>nd<\/sup> or 3<sup>rd<\/sup> medication, breakthrough care plans, number of medication trials, decisions about medical feeds and fluids, parental worries, as examples. This session will be case based, facilitate participant discussion, and provide participants with handouts that assist with daily patient care.<\/span><\/p>\n<p><strong>Title: <em>Spirituality in PPC<\/em><br \/>\n<\/strong><strong>Date<\/strong>: 25<sup>th<\/sup> May 2022<br \/>\n<strong>Duration<\/strong>: 1-day (08.30 -16.30)<br \/>\n<strong>Coordinator<\/strong>: Christina Puchalski<br \/>\n<strong>Co presenters<\/strong>: Richard Bauer, Joan Marston<br \/>\n<strong>Min Capacity<\/strong>: 30 pers.<strong>Max Capacity<\/strong>: 80 pers.<br \/>\n<strong>Description<\/strong>:<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<p><!--vcv no format--><\/p>\n","protected":false},"excerpt":{"rendered":"<p>In response to popular demand, four pre-congress workshops on different&#8230;<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":36,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":[],"_links":{"self":[{"href":"https:\/\/www.childrenpalliativecarecongress.org\/congress-2022\/wp-json\/wp\/v2\/pages\/241"}],"collection":[{"href":"https:\/\/www.childrenpalliativecarecongress.org\/congress-2022\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.childrenpalliativecarecongress.org\/congress-2022\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.childrenpalliativecarecongress.org\/congress-2022\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.childrenpalliativecarecongress.org\/congress-2022\/wp-json\/wp\/v2\/comments?post=241"}],"version-history":[{"count":23,"href":"https:\/\/www.childrenpalliativecarecongress.org\/congress-2022\/wp-json\/wp\/v2\/pages\/241\/revisions"}],"predecessor-version":[{"id":2017,"href":"https:\/\/www.childrenpalliativecarecongress.org\/congress-2022\/wp-json\/wp\/v2\/pages\/241\/revisions\/2017"}],"up":[{"embeddable":true,"href":"https:\/\/www.childrenpalliativecarecongress.org\/congress-2022\/wp-json\/wp\/v2\/pages\/36"}],"wp:attachment":[{"href":"https:\/\/www.childrenpalliativecarecongress.org\/congress-2022\/wp-json\/wp\/v2\/media?parent=241"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}