5th Maruzza International Congress
5th Maruzza International Congress

Speakers & Moderators

Marcello OrzalesiScientific Program SupervisorProfessor and Chief of the Department of Child Health and Neonatology, “La Sapienza” University  of Rome (Retired). Director of the Department of Medical and Surgical Neonatology “Bambino Gesù” Children’s Hospital,Rome (Retired). Past President of the Bioethics Committee of the Italian Pediatric Society. Member of the Scientific Committee and Director of the Training School in Pediatric Palliative Care of the Maruzza Foundation, Rome, Italy

Abu-Saad Huijer Huda, RN, PhD, FEANS, FAAN, Dean Faculty of Health Sciences, University of Balamand, Lebanon

Aldridge Jan, Professor (Research) University of York and Honorary Consultant Clinical Psychologist, The Children`s Hospital, Leeds Teaching Hospitals Trust, Leeds, UK

Asti Matteo, Lecturer in Film and Media Studies, Accademia di Belle Arti Santa Giulia, Brescia, Italy

Baker Justin N, Chief, Division of Quality of Life and Palliative Care, Attending Physician, Quality of Life Service Director, Hematology/Oncology Fellowship Program Associate Member, Department of Oncology St Jude Children’s Research Hospital, Memphis, USA

Barclay Sarah, founder and co-Director of The Medical Mediation Foundation, a not for profit organisation providing mediation to help resolve conflicts between parents and health professionals and training in recognising and managing conflict, in the UK and internationally, London, UK

Bauer Richard W, MM, BCC, MSW – Board Certified Chaplain, George Washington University Institute for Spirituality and Health; Chaplain Children’s National Hospital, Washington, DC, USA

Beecham Emma, Research Fellow, Louis Dundas Centre for Children’s Palliative CareUCL Great Ormond Street Institute of Child Health, London, UK

Benini Franca, Director of Paediatric Palliative Care – Pain Service Department of Women’s and Children’s Health, University of Padua, Italy

Bernadá Mercedes, Medical Director- Pediatric Palliative Care Unit- Pereira Rossell Hospital Center; Associate Professor of Pediatrics- School of Medicine, Universidad de la República; Montevideo, Uruguay

Bluebond Langner Myra, PhD, Hon. FRCPCH, Professor in Palliative Care for Children and Young People, Emeritus UCL School of Life and Medical Sciences UCL Great Ormond Street Institute of Child Health, Louis Dundas Centre for Children’s Palliative Care, England and Board of Governors Professor of Anthropology, Emerita, Rutgers University, New Jersey, USA

Brook Lynda, Macmillan Consultant in Paediatric Palliative Care Alder Hey Children’s NHS Foundation Trust, Liverpool, UK

Bycroft Karyn, Nurse Practitioner, Paediatric Palliative Care Service, Starship Child Health, Auckland, New Zealand; National Clinic Lead Paediatric Palliative Care Clinical Network

Carter Brian S., MD, FAAP, Editor, Clinical Pediatrics, Professor of Pediatrics (Neonatology & Fetal Health), Chairman, and Sirridge Endowed Professor, Department of Medical Humanities & Bioethics, The University of Missouri-Kansas City, School of Medicine, Missouri, USA

Chong Poh-Heng, Medical Director, HCA Hospice, Singapore. Vice Chair, Singapore Hospice Council

Craig Finella, Consultant in Paediatric Palliative Medicine at the Louis Dundas Centre, Great Ormond Street Hospital for Children, London, UK

Downing Julia, Chief Executive International Children’s Palliative Care Network (ICPCN), UK and Uganda

Fraser Lorna, Professor of Epidemiology and Director of the Martin House Research Centre, University of York, UK

Friedrichsdorf Stefan J, MD, FAAP, Center of Pediatric Pain Medicine, Palliative Care and Integrative Medicine. Professor of Pediatrics, University of California at San Francisco, UCSF Benioff Children’s Hospitals in Oakland and San Francisco, USA

Garchacova Anna, Psychologist, Psychotherapist, Director and founder of the non-profit organization «Belarusian Children`s Hospice», course leader Palliative Medicine BelMAPO, Minsk, the Republic of Belarus

Garros Daniel, MD, University of Alberta, Clinical Professor of Pediatrics, Stollery Children’s Hospital Pediatric Intensive Care Unit staff; Data-base and Quality& Initiatives lead, Edmonton, AB Canada

Goldman Ann, Paediatric Palliative Care Physician, (retired) Consultant in Paediatric Palliative Care, Great Ormond Street Hospital for Children, London, UK

Hauer Julie, MD, FAAHPM, Division of General Pediatrics, Boston Children’s Hospital, USA

Jankovic Momcilo, MD, Director Psychosocial Area, University of Milano-Bicocca, Foundation MBBM, Monza, Italy

Jones Barbara L., PhD, MSW, FNAP, Associate Dean for Health Affairs, Distinguished Teaching Professor and Josleen and Frances Lockhart, Memorial Professor of Social Work, Director Institute for Collaborative Health Research and Practice, Chair Department of Health Social Work, Associate Director of Social Sciences and Community Based Research, Livestrong Cancer Institutes, Distinguished Professor of Health Social Work, Oncology, Population Health, and Psychiatry, Dell Medical School, USA

Kars Marijke, Assistant Professor Julius Centrum for Health Sciences and Primary Care, Expertise Center Palliative Care Utrecht, Netherlands

Kerr-Elliott Tara, Children’s Palliative Care Nurse and Educator / NIHR Clinical Nursing Fellow, Louis Dundas Centre for Palliative Care , Great Ormond Street Hospital , London, UK

Lacerda Ana, Pediatric Oncologist, master in Palliative Care, Pediatric Palliative Care Program, Department of Child and Adolescent Oncology, Portuguese Institute of Oncology, Lisbon Centre, Portugal

Locatelli Chiara, MD PhD, Neonatal Intensive Care Unit, rare Diseases Unit in Neonatology, “Percorso Giacomo” (PPC), Program, S. Orsola University Hospital, Bologna, Italy

Luyirika Emmanuel, Executive Director African Palliative Care Association,Kampala, Uganda

Mancini Smith Alexandra, National Lead Nurse for Neonatal Palliative Care, National Neonatal Palliative Care Project, Chelsea & Westminster NHS Foundation Trust, The True Colours Trust, London, UK

Marston Joan, Executive lead on Advocacy for PallCHASE, Clinical and Education Director Sunflower Children’s Hospice, Bloemfontein. South Africa

Masserdotti Alessandro, Philosopher and Interaction Designer. Professor of User Experience Design, Domus Academy and  Professor of interaction design, Politecnico di Milano. Digital Director of Dotdotdot Agency: Active in Creating a Bridge Between Healthcare and Design. Italy

Meiring Michelle, CEO of Paedspal, Chairperson of PatchSA (National Children’s Palliative Care Network), Couse Convenor PG Diploma Paediatric Palliative Care, University of Cape Town, South Africa

Muckaden Mary Ann, Professor (Former Head), Department of Palliative Medicine, Tata Memorial Hospital, Mumbai, India. Past President, International Children’s Palliative Care Network. President Indian Association of Palliative Care

Ostgathe Christoph, Head of Department and Chair for Palliative Medicine, University Hospital Erlangen, Palliative Medicine Friedrich-Alexander-Universität Erlangen-Nürnberg, President of the European Association for Palliative Care (EAPC) , Germany

Papadatou Danai, Professor of Clinical Psychology, Nursing Dept, National and Kapodistrian University of Athens, President of “Merimna”, Board of Directors, Association for the Care of Children and Families Facing Illness and Death, Greece

Pangrazzi Arnaldo, Professor of Pastoral Care and Clinical Pastoral Education at the Camillianum – International Institute of the Theology of pastoral Health Care, Rome, Italy. Author of different books on Accompanying the dying, caring for the bereaved, support groups for people in grief, formation of hospital volunteers, utilizing the enneagram for team work.

Parravicini Elvira, Associate Professor of Pediatrics, Neonatologist, Medical Director of the Neonatal Comfort Care Program, Columbia University Irving Medical Center, New York, NY, USA

Penny Alison, Director Childhood Bereavement Network, Coordinator National Bereavement Alliance, London, UK

Platt Williams Melissa, Sam’s Mum, Healthcare Consultant, Palliative Coach & Co-Founder Trustee of the Footprints 4 Sam Trust in South Africa. PATCH South Africa Committee Member (Palliative Care for Children)

Puchalski Christina M., MD, MS, OCDS, FACP, FAAHPM, Professor, Dept of Medicine and Health Sciences, Executive Director, George Washington Institute for Spirituality and Health, George Washington University School of Medicine, Co-Director MFA-GWU Supportive and Palliative Care Clinic in Oncology, USA

Rice Andrew, Professor of Pain Research, Department of Surgery and Cancer, Imperial College, Chelsea and Westminster Hospital Campus, London, UK

Roland Jonty, Adviser on Health System Reform and Universal Health Coverage to governments, global institutions and private sector organizations, London, UK

Volans Amy, Consultant Clinical Psychologist and Systemic Psychotherapist, East of England Children’s Palliative Care Service and Newham Diana Children’s Community Palliative Care Team. NHS-London Region Co-Lead for BCYP PEoLC, UK

Wool Charlotte, PhD, RN, FAAN, Associate Research Scientist, Columbia University, New York, USA

Wolfe Joanne, Division Chief, Pediatric Palliative Care, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute and Director of Palliative Care, Boston Children’s Hospital, Massachusetts, USA