Poster Presentations

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206 posters
Improving anticholinergic antihistamine prescribing for children attending a children’s hospice

Improving anticholinergic antihistamine prescribing for children attending a children’s hospice

Sozan Abdelrahman

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What’s in a Name? Parents’ Perceptions of Pediatric Palliative Care in Pediatric Haemato-Oncology

What’s in a Name? Parents’ Perceptions of Pediatric Palliative Care in Pediatric Haemato-Oncology

Marta Adavastro

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Family Remote Music Therapy for Cognitively-Impaired Children with Medical Complexity

Family Remote Music Therapy for Cognitively-Impaired Children with Medical Complexity

Terrah Akard

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Translation & multi-site validation of ACCPED from Italy to English.

Translation & multi-site validation of ACCPED from Italy to English.

Nidhal Al Harrasi

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Comparative Abstract: Development of Palliative Care in Ireland and Oman.

Comparative Abstract: Development of Palliative Care in Ireland and Oman.

Nidhal Al Harrasi

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From Voices to Vision: A Family-Informed Model for the Future of Paediatric Palliative Care

From Voices to Vision: A Family-Informed Model for the Future of Paediatric Palliative Care

Tala Al- Dabbous

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Intravenous Ketamine for Refractory Cancer Pain in 433 Patients: Real-World Study from Middle East

Intravenous Ketamine for Refractory Cancer Pain in 433 Patients: Real-World Study from Middle East

Anwar Al- Nassan

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Physician Attitudes on Early Pediatric Palliative Care in Eastern Mediterranean Oncology: ADAPT

Physician Attitudes on Early Pediatric Palliative Care in Eastern Mediterranean Oncology: ADAPT

Anwar Al- Nassan

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Pediatric Palliative Care at a National Cancer Center: A 10-Year Service Evolution

Pediatric Palliative Care at a National Cancer Center: A 10-Year Service Evolution

Anwar Al- Nassan

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Schooling, Identity and Meaning-Making in Children and Adolescents with Cancer

Schooling, Identity and Meaning-Making in Children and Adolescents with Cancer

Monique Albuquerque Ferreira

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Symptom Management Planning in Paediatric Palliative Care: A Systematic Review

Symptom Management Planning in Paediatric Palliative Care: A Systematic Review

Haiqah Amjad

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Evaluation of an Online Educational Programme in PPC for Professionals in Norway

Evaluation of an Online Educational Programme in PPC for Professionals in Norway

Monica Andresen

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Treating the Child, Trusting the Parent: Parent-Reported Benefit of Gabapentin for Pain in Children

Treating the Child, Trusting the Parent: Parent-Reported Benefit of Gabapentin for Pain in Children

Gail Andrews

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Tiny Frames, Complex Stories: Musculoskeletal Pain and Psychosocial Factors in MOPD Type 2

Tiny Frames, Complex Stories: Musculoskeletal Pain and Psychosocial Factors in MOPD Type 2

Helen Armstrong

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Diagnostic Groups and Outcomes in Children Referred to Specialized Pediatric Palliative Care Team

Diagnostic Groups and Outcomes in Children Referred to Specialized Pediatric Palliative Care Team

Karin Bäckdahl

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From lab inception to clinical impact: Building a research strategy in pediatric palliative care

From lab inception to clinical impact: Building a research strategy in pediatric palliative care

Justin N Baker

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Clinicians’ Training Needs in Transition-Age Palliative Care: An Italian Delphi Study

Clinicians’ Training Needs in Transition-Age Palliative Care: An Italian Delphi Study

Iacopo Bellani

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Clinical obstinacy and unreasonable persistence in paediatric care: theory and practice

Clinical obstinacy and unreasonable persistence in paediatric care: theory and practice

Cristina Beltrami

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The “Quiet Box” – Memory Making in the Neonatal Intensive Care Unit (NICU)

The “Quiet Box” – Memory Making in the Neonatal Intensive Care Unit (NICU)

Yael Ben Gal

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Bringing Paediatric Palliative Care Closer to Home: A Family-Centred Community Model

Bringing Paediatric Palliative Care Closer to Home: A Family-Centred Community Model

Laura Berrill

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Trust in Pediatric Oncologists Among Parents of Children with Poor Prognosis Cancer

Trust in Pediatric Oncologists Among Parents of Children with Poor Prognosis Cancer

Alexa Bobelis

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POINT-OF-CARE ULTRASOUND IN PEDIATRIC PALLIATIVE CARE:A LOOK AT THE PRESENT AND FUTURE

POINT-OF-CARE ULTRASOUND IN PEDIATRIC PALLIATIVE CARE:A LOOK AT THE PRESENT AND FUTURE

Marco Bolognani

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Can I die from this disease? End-of-life communication patterns in pediatric advance care planning

Can I die from this disease? End-of-life communication patterns in pediatric advance care planning

Julie Brunetta

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Communication about values and goals of care: a systematic review of educational strategies

Communication about values and goals of care: a systematic review of educational strategies

Julie Brunetta

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From training to implementation: knowledge transfer in pediatric advance care planning

From training to implementation: knowledge transfer in pediatric advance care planning

Julie Brunetta

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A multidisciplinary champion model for paediatric palliative care capacity building

A multidisciplinary champion model for paediatric palliative care capacity building

Ané Büchner

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Validation of an AI-Based Early Detection System for Pediatric Palliative Care Needs in Denmark

Validation of an AI-Based Early Detection System for Pediatric Palliative Care Needs in Denmark

Alexandra Bungum

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Pediatric autonomy vs. children’s agency: What is the difference and how does it matter?

Pediatric autonomy vs. children’s agency: What is the difference and how does it matter?

Sydney Campbell

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Moral Distress as a Barrier to Perinatal Palliative Care: A Literature Review

Moral Distress as a Barrier to Perinatal Palliative Care: A Literature Review

Oriana Capelli

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Care, culture, complexity: cultural humility and ethics of care in home-based PPC

Care, culture, complexity: cultural humility and ethics of care in home-based PPC

Anna Capogreco

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An Intra-Hospital Paediatric Palliative Care Support Team in Oncology: A Four-Year Analysis

An Intra-Hospital Paediatric Palliative Care Support Team in Oncology: A Four-Year Analysis

Filipa Caseiro

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After Death Reflections: Reflective practice on a national scale

After Death Reflections: Reflective practice on a national scale

Alison Cashell

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Formalising community care for children at end of life – implementation of HSE guidance

Formalising community care for children at end of life – implementation of HSE guidance

Alison Cashell

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Complex Clinical Decision-Making in Pediatric Cardiology and Palliative Care: A Case Report

Complex Clinical Decision-Making in Pediatric Cardiology and Palliative Care: A Case Report

Igor Catalano

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Rethinking Space in Pediatric Palliative Care: Adapting Hospital Rooms for End of Life Care

Rethinking Space in Pediatric Palliative Care: Adapting Hospital Rooms for End of Life Care

Louise CHARRIE

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French Translation and Cultural Adaptation of a Pain-Assessment Scale for Newborns

French Translation and Cultural Adaptation of a Pain-Assessment Scale for Newborns

Louise CHARRIE

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From Complexity to Competence: High-Fidelity Simulation Training in Paediatric Palliative Care

From Complexity to Competence: High-Fidelity Simulation Training in Paediatric Palliative Care

Silvia Ciprés Roig

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The Incidence of Mucolipidosis II (I-Cell Disease) in Ireland: A Retrospective Chart Review

The Incidence of Mucolipidosis II (I-Cell Disease) in Ireland: A Retrospective Chart Review

Jonathan Clarke

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End-of-Life Practices at Pediatric Intensive Care Units in Brazil: A Nationwide Survey

End-of-Life Practices at Pediatric Intensive Care Units in Brazil: A Nationwide Survey

Cintia Tavares Cruz

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Pediatric Withdrawal of Life-Sustaining Technologies in the Intensive Care Unit

Pediatric Withdrawal of Life-Sustaining Technologies in the Intensive Care Unit

Andrea Cuviello

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What technology looks like in children’s palliative care: a “day in the life”

What technology looks like in children’s palliative care: a “day in the life”

Laura Dale-Harris

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Digital technology in children’s palliative care: an open-access library for global practitioners

Digital technology in children’s palliative care: an open-access library for global practitioners

Erin Das

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Palliative sedation in children cared for by pediatric palliative care teams: multicentric study

Palliative sedation in children cared for by pediatric palliative care teams: multicentric study

Iñigo de Noriega Echevarría

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Patient safety in pediatric palliative care: a scoping review

Patient safety in pediatric palliative care: a scoping review

Iñigo de Noriega Echevarría

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Beyond age-based transfer: a flexible framework for transition in paediatric palliative care

Beyond age-based transfer: a flexible framework for transition in paediatric palliative care

Valentina De Tommasi

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Hope4Kids WP8: Landscape of Palliative Care Education and Training Programs in Pediatric Oncology

Hope4Kids WP8: Landscape of Palliative Care Education and Training Programs in Pediatric Oncology

Lucia De Zen

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Bereavement Experiences in Pediatric Palliative Care: Results of a Regional Survey

Bereavement Experiences in Pediatric Palliative Care: Results of a Regional Survey

Lucia De Zen

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Trisomy 18 in clinical practice: perspectives of healthcare professionals and parents

Trisomy 18 in clinical practice: perspectives of healthcare professionals and parents

Lucia De Zen

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REACH Nurses: Strengthening the Global Children’s Palliative Care Workforce Through Online Education

REACH Nurses: Strengthening the Global Children’s Palliative Care Workforce Through Online Education

Megan Doherty

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Development and Pilot Testing of a Structured Perinatal Palliative Care Program

Development and Pilot Testing of a Structured Perinatal Palliative Care Program

Laure Dombrecht

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Validation of a Dutch PaPaS Scale: Mixed‑Methods Study with Professionals, Parents and Adolescents

Validation of a Dutch PaPaS Scale: Mixed‑Methods Study with Professionals, Parents and Adolescents

Laure Dombrecht

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A retrospective audit of Emergency Care Plans in an Irish tertiary paediatric hospital

A retrospective audit of Emergency Care Plans in an Irish tertiary paediatric hospital

Aoife Doolan

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Enabling Realistic Choice Through a National Paediatric Palliative Care Advisory Service

Enabling Realistic Choice Through a National Paediatric Palliative Care Advisory Service

Jonathan Downie

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Building National Capability in Children’s Palliative Care: A Scottish Nurse Education Partnership

Building National Capability in Children’s Palliative Care: A Scottish Nurse Education Partnership

Jonathan Downie

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Strengthening Paediatric Palliative Care Capacity in Papua New Guinea

Strengthening Paediatric Palliative Care Capacity in Papua New Guinea

DONNA DREW

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A Pilot Feasibility Randomized Controlled Trial for Children with Severe Neurologic Impairment

A Pilot Feasibility Randomized Controlled Trial for Children with Severe Neurologic Impairment

Veronica Dussel

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How many children need palliative care? A scoping review of systems that use administrative data

How many children need palliative care? A scoping review of systems that use administrative data

Veronica Dussel

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Management of Intractable Cancer Pain in Adolescents and Young Adults using an Intrathecal Pain Pump

Management of Intractable Cancer Pain in Adolescents and Young Adults using an Intrathecal Pain Pump

Thomas Eichholz

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Hope4Kids Work Package 6: Developing International Guidelines for Oncological Paediatric Palliative Care

Hope4Kids Work Package 6: Developing International Guidelines for Oncological Paediatric Palliative Care

Linda Fasterius

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From Cloud to Butterfly: Narrative Meaning-Making and Continuing Bonds in Paediatric Palliative Care

From Cloud to Butterfly: Narrative Meaning-Making and Continuing Bonds in Paediatric Palliative Care

Monique Ferreira

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Towards high-quality paediatric palliative care: from perceived quality to measurable indicators

Towards high-quality paediatric palliative care: from perceived quality to measurable indicators

Robin Fierst van Wijnandsbergen

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A qualitative evidence synthesis of sleep disruption in parents of life limited or complex children.

A qualitative evidence synthesis of sleep disruption in parents of life limited or complex children.

Jean Fitzsimons

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A Narrative Review of Education and Training in Paediatric Palliative Care for Medical Professionals

A Narrative Review of Education and Training in Paediatric Palliative Care for Medical Professionals

Katie Flinn

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Paediatric Trainees’ Experiences of Education and Training in Paediatric Palliative Care

Paediatric Trainees’ Experiences of Education and Training in Paediatric Palliative Care

Katie Flinn

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Healthcare Providers’ Attitudes Towards Advanced Care Planning in Children with Medical Complexity

Healthcare Providers’ Attitudes Towards Advanced Care Planning in Children with Medical Complexity

Riza Flores

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Pre-Connection Information Behaviors in Grief Support: Web Analysis of the Grief Support Project

Pre-Connection Information Behaviors in Grief Support: Web Analysis of the Grief Support Project

Ayaka Fujita

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How Do Oncologists Communicate About Prognostic Uncertainty? A Scoping Review of the Literature

How Do Oncologists Communicate About Prognostic Uncertainty? A Scoping Review of the Literature

Stephanie Gehle

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Supporting Advance Care Planning in Paediatric Palliative Care: The Co-IMPACT C3 Study Programme

Supporting Advance Care Planning in Paediatric Palliative Care: The Co-IMPACT C3 Study Programme

Jasmijn Gengler

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The Pediatric GoWish Together tool as a bridge to Advanced Care Planning

The Pediatric GoWish Together tool as a bridge to Advanced Care Planning

Carlotta Ghironi

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A Child’s Voice Across Cultures: Advance Care Planning in Pediatric Palliative Care

A Child’s Voice Across Cultures: Advance Care Planning in Pediatric Palliative Care

Carlotta Ghironi

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Developing an Integrative Medicine Care Model for Palliative Patients in a Children’s Hospital

Developing an Integrative Medicine Care Model for Palliative Patients in a Children’s Hospital

Oran Goldshmid

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Short Lives, Lasting Stories: Documentary Film as a Narrative-Based Educational Intervention in PPC

Short Lives, Lasting Stories: Documentary Film as a Narrative-Based Educational Intervention in PPC

Naomi Goloff

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Transfusion management at end of life in pediatric hospice: a clinical-ethical case report

Transfusion management at end of life in pediatric hospice: a clinical-ethical case report

Gabriella Guida

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Low-dose methadone for mixed pain and dyspnea in palliative care: a case report of cerebral palsy

Low-dose methadone for mixed pain and dyspnea in palliative care: a case report of cerebral palsy

Gabriella Guida

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Methadone in pediatric palliative care: a 14-year retrospective descriptive study

Methadone in pediatric palliative care: a 14-year retrospective descriptive study

Gabriella Guida

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Methadone for complex gastrointestinal pain in non-oncological pediatric palliative care

Methadone for complex gastrointestinal pain in non-oncological pediatric palliative care

Gabriella Guida

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Healthcare workers’ perceptions of neonatal memory boxes at an LMIC tertiary hospital

Healthcare workers’ perceptions of neonatal memory boxes at an LMIC tertiary hospital

Karli Harrison

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Mobile units of healthcare clowns empower palliative children and youth in their home surroundings.

Mobile units of healthcare clowns empower palliative children and youth in their home surroundings.

Elisabeth Helland Larsen

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Paediatric Palliative Care and Society: Space to learn, time to change.

Paediatric Palliative Care and Society: Space to learn, time to change.

Naomi Heller

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Finding Joy in Colors: Adolescent Reflections on Art Interventions during Cancer Treatments

Finding Joy in Colors: Adolescent Reflections on Art Interventions during Cancer Treatments

Verna Hendricks-Ferguson

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Development of a National Centre of Research Excellence for Paediatric Palliative Care in Australia

Development of a National Centre of Research Excellence for Paediatric Palliative Care in Australia

Anthony Herbert

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Evaluation of the Paediatric Palliative Care Outreach Collaborative

Evaluation of the Paediatric Palliative Care Outreach Collaborative

Anthony Herbert

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Implementation of Family Talk Intervention: Organizational Context Shapes Palliative Care Practice

Implementation of Family Talk Intervention: Organizational Context Shapes Palliative Care Practice

Maja Holm

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From Education to Community: A National Pediatric Palliative Care ECHO Project

From Education to Community: A National Pediatric Palliative Care ECHO Project

Lucie Hrdlickova

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When “Spirituality” Becomes a Barrier: Understanding Spiritual Needs in Adolescents and Young Adults

When “Spirituality” Becomes a Barrier: Understanding Spiritual Needs in Adolescents and Young Adults

Lucie Hrdlickova

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Building Perinatal Palliative Care Where Diagnosis Begins: The PeriVision Project

Building Perinatal Palliative Care Where Diagnosis Begins: The PeriVision Project

Lucie Hrdlickova

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IMPLEMENTATION OF A MULTIPROFESSIONAL TEACHING OUTPATIENT CLINIC FOR PEDIATRIC PALLIATIVE CARE

IMPLEMENTATION OF A MULTIPROFESSIONAL TEACHING OUTPATIENT CLINIC FOR PEDIATRIC PALLIATIVE CARE

Simone Iglesias

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PARENTAL EXPERIENCES IN CARING FOR CHILDREN WITH COMPLEX CHRONIC CONDITIONS DURING DEHOSPITALIZATION

PARENTAL EXPERIENCES IN CARING FOR CHILDREN WITH COMPLEX CHRONIC CONDITIONS DURING DEHOSPITALIZATION

Simone Iglesias

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ASSESSMENT OF PALLIATIVE CARE KNOWLEDGE AMONG MULTIPROFESSIONAL RESIDENTS

ASSESSMENT OF PALLIATIVE CARE KNOWLEDGE AMONG MULTIPROFESSIONAL RESIDENTS

Simone Iglesias

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Palliative Care in Lithuanian Neonatal Intensive Care Units: Nurses’ Experiences.

Palliative Care in Lithuanian Neonatal Intensive Care Units: Nurses’ Experiences.

Ina Kapitanovienė

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What Matters Most? Parental Experiences of Specialist Paediatric Palliative Care

What Matters Most? Parental Experiences of Specialist Paediatric Palliative Care

Elizabeth-Anne Kelly

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Improving Healthcare Professionals’ Knowledge and Confidence in ACP: An Interventional Study

Improving Healthcare Professionals’ Knowledge and Confidence in ACP: An Interventional Study

Emma Kofod Kildemoes

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Implementation of an Individualized Perinatal Palliative Care Plan

Implementation of an Individualized Perinatal Palliative Care Plan

Therese kjellin

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A remote palliative care project for children with oncological/hematological diseases in Russia.

A remote palliative care project for children with oncological/hematological diseases in Russia.

Natalia Klipinina

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Developing National Guidelines for Paediatric Palliative Care services – the Singapore experience

Developing National Guidelines for Paediatric Palliative Care services – the Singapore experience

Michelle Koh

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Suffering, Grief and Hope in the Context of the Dying of Children

Suffering, Grief and Hope in the Context of the Dying of Children

Markéta Královcová

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Friendly Fire – is paediatric palliative care always the knight in shining armour?

Friendly Fire – is paediatric palliative care always the knight in shining armour?

Jiri Kralovec

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Parental spirituality changes following the loss of a child: A nationwide study

Parental spirituality changes following the loss of a child: A nationwide study

Ulrika Kreicbergs

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Child-Specific Bioethics: A Rapid Review of Pediatric Palliative Care Ethics Guidelines

Child-Specific Bioethics: A Rapid Review of Pediatric Palliative Care Ethics Guidelines

Christina Lamb

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Navigating Loss and Sexuality: Fathers’ Experiences During Serious Illness and the Death of a Child

Navigating Loss and Sexuality: Fathers’ Experiences During Serious Illness and the Death of a Child

Kari Friis Larsen

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Factors Facilitating and Hindering the Implementation and Integration of Pediatric Palliative care

Factors Facilitating and Hindering the Implementation and Integration of Pediatric Palliative care

Helena Liljedal

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Wanting to Provide Pediatric Palliative Care but Lacking the Conditions to Do So ​

Wanting to Provide Pediatric Palliative Care but Lacking the Conditions to Do So ​

Helena Liljedal

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Palliative Needs of Adolescents & Young Adults with Life-Limiting Conditions:A Systematic Review

Palliative Needs of Adolescents & Young Adults with Life-Limiting Conditions:A Systematic Review

Hannah Linane

Monitor D

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Listening to Their Voices;Needs of Adolescents&Young Adults Known to Specialist Palliative Care

Listening to Their Voices;Needs of Adolescents&Young Adults Known to Specialist Palliative Care

Hannah Linane

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Adolescents&Young Adults with Severe Neurological Impairment in Specialist Palliative Care

Adolescents&Young Adults with Severe Neurological Impairment in Specialist Palliative Care

Hannah Linane

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PARAMOUNT: Pain Neuroscience Education for Parents of Children with Life-limiting Conditions

PARAMOUNT: Pain Neuroscience Education for Parents of Children with Life-limiting Conditions

Christina Liossi

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Supporting goals of care with a 24-hour pediatric palliative nursing phone line

Supporting goals of care with a 24-hour pediatric palliative nursing phone line

Stephanie Liversidge

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Palliative care opportunities in pediatric patients with onco-hematological diseases

Palliative care opportunities in pediatric patients with onco-hematological diseases

Giovanna Locatelli

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Early Integration of Perinatal Palliative Care for Complex Fetal Congenital Heart Disease

Early Integration of Perinatal Palliative Care for Complex Fetal Congenital Heart Disease

Sarah Lord

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Quality indicators for children with life-threatening or life–limiting diseases:A systematic review

Quality indicators for children with life-threatening or life–limiting diseases:A systematic review

Camilla Lykke

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Evolving Use of Methadone in Pediatric Palliative Oncology: A 12-Year Case Series

Evolving Use of Methadone in Pediatric Palliative Oncology: A 12-Year Case Series

Dave Lysecki

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“Life-changing”: A mixed-methods study of in-home massage therapy for children with serious illness

“Life-changing”: A mixed-methods study of in-home massage therapy for children with serious illness

Dave Lysecki

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Structured pathway for managing refractory hip pain in paediatric palliative care patients

Structured pathway for managing refractory hip pain in paediatric palliative care patients

Irene Maghini

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Transition to adult services for young people with life limiting conditions: Role of ​primary care

Transition to adult services for young people with life limiting conditions: Role of ​primary care

Josefine Magnusson

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1990-2025: A Text-Mining Perspective on the Evolution of Paediatric Palliative Care Literature

1990-2025: A Text-Mining Perspective on the Evolution of Paediatric Palliative Care Literature

Nabiha Mahmud

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More Than Cancer: Changing Patterns of Referral to Paediatric Hospice Care Over Five Years

More Than Cancer: Changing Patterns of Referral to Paediatric Hospice Care Over Five Years

Vicky Malik

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Domiciliary Cornea Ablation After Home-Based End Of Life in a Patient with Adrenoleukodistrophy ODYSTROPHY

Domiciliary Cornea Ablation After Home-Based End Of Life in a Patient with Adrenoleukodistrophy ODYSTROPHY

Maria Celina Malzone

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Introducing Implementation Science to Pediatric Palliative Care: A Regional Training Study

Introducing Implementation Science to Pediatric Palliative Care: A Regional Training Study

Anna Marinetto

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Non–Cystic Fibrosis Bronchiectasis in Pediatric Palliative Care Patients

Non–Cystic Fibrosis Bronchiectasis in Pediatric Palliative Care Patients

Sara Martín Uceda

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Home non-invasive ventilation in a pediatric palliative care programme: a cross-sectional study

Home non-invasive ventilation in a pediatric palliative care programme: a cross-sectional study

Sara Martín Uceda

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Regional Patterns of Clonidine Use in Paediatric Palliative Care: A System-Wide Review

Regional Patterns of Clonidine Use in Paediatric Palliative Care: A System-Wide Review

Linda Maynard

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Beyond Diagnosis: Identifying Palliative Care Needs in Children with Medical Complexity

Beyond Diagnosis: Identifying Palliative Care Needs in Children with Medical Complexity

Linda Maynard

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Reducing Administrative Burden in Paediatric Palliative Care: Foundations for Quality Improvement

Reducing Administrative Burden in Paediatric Palliative Care: Foundations for Quality Improvement

Ciara Mc Elhinney

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Gabapentin for Symptom Management of Self-Injurious Behaviour in Lesch–Nyhan Disease:2 Case Reports

Gabapentin for Symptom Management of Self-Injurious Behaviour in Lesch–Nyhan Disease:2 Case Reports

Fiona McElligott

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Mapping Ireland’s Transition Framework in the context of Specialist Palliative Care services.

Mapping Ireland’s Transition Framework in the context of Specialist Palliative Care services.

Fiona McElligott

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Availability of Integrative Pain Management in Children: Themes from an International Survey

Availability of Integrative Pain Management in Children: Themes from an International Survey

Michael J. McNeil

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Bringing care, teaching and research together in an African Paediatric Palliative Care of Excellence

Bringing care, teaching and research together in an African Paediatric Palliative Care of Excellence

Michelle Meiring

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Pali4NPCare: Advancing Nursing in Perinatal, Neonatal and Paediatric Palliative Care

Pali4NPCare: Advancing Nursing in Perinatal, Neonatal and Paediatric Palliative Care

Joana Mendes

Monitor E

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A New Frontier in Pediatric Palliative Care: Organ Donation at the End of Life

A New Frontier in Pediatric Palliative Care: Organ Donation at the End of Life

Anna Mercante

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Pae Herenga – Family experiences informing implementation of a national model of care

Pae Herenga – Family experiences informing implementation of a national model of care

Tess Moeke-Maxwell

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Lessons Learned from Developing a Sustainable Ambulatory Pediatric Palliative Care Clinic

Lessons Learned from Developing a Sustainable Ambulatory Pediatric Palliative Care Clinic

Alexis Morvant

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End-of-Life Care and Treatment Decisions: A Major Source of Moral Distress in Japanese PICUs

End-of-Life Care and Treatment Decisions: A Major Source of Moral Distress in Japanese PICUs

Nao Nishimura

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Prenatal integration of Pediatric Palliative Care: A case study of CHARGE Syndrome

Prenatal integration of Pediatric Palliative Care: A case study of CHARGE Syndrome

Thomas Nørrelykke Nissen

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Mapping Clinical Risk Assessment Frameworks in Home-Based Healthcare

Mapping Clinical Risk Assessment Frameworks in Home-Based Healthcare

Juliet Noble

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Comprehensive Palliative Care for Children with Pulmonary Hypertension: A Scoping Review

Comprehensive Palliative Care for Children with Pulmonary Hypertension: A Scoping Review

Regina Okhuysen-Cawley

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Pediatric Palliative Care in Turkiye: Bridging the Gap in Physician Competency

Pediatric Palliative Care in Turkiye: Bridging the Gap in Physician Competency

Fatma Zehra Öztek Çelebi

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Beyond the brain: MALS-triggered PSH as a management challenge in Pediatric Palliative Care

Beyond the brain: MALS-triggered PSH as a management challenge in Pediatric Palliative Care

Fatma Zehra Öztek Çelebi

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The transition pathway to adulthood: where do we stand?

The transition pathway to adulthood: where do we stand?

Giuseppina Paone

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A Review of Opioid Availability in Pediatric Palliative Care in Low- and Middle-Income Countries

A Review of Opioid Availability in Pediatric Palliative Care in Low- and Middle-Income Countries

Eddy Carolina Pedraza

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Caregivers of children in palliative care: identifying education and training needs

Caregivers of children in palliative care: identifying education and training needs

Federico Pellegatta

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From Caregiver to Hug-Giver: Building a Sibling-Centered Framework in Pediatric Palliative Care

From Caregiver to Hug-Giver: Building a Sibling-Centered Framework in Pediatric Palliative Care

Federico Pellegatta

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Co-designing an Integrated Pediatric Palliative Care Pathway Between Hospital and Community

Co-designing an Integrated Pediatric Palliative Care Pathway Between Hospital and Community

Federico Pellegatta

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When Adult Care Needs Pediatric Expertise: A Reverse Transition Case

When Adult Care Needs Pediatric Expertise: A Reverse Transition Case

Federico Pellegatta

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Point-of-Care Ultrasound in Extra-Hospital Pediatric Hospice Care: Clinical Integration and Training

Point-of-Care Ultrasound in Extra-Hospital Pediatric Hospice Care: Clinical Integration and Training

Federico Pellegatta

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Tailored Emergency Training in Pediatric Palliative Care: Integrating PPC and Emergency Medicine

Tailored Emergency Training in Pediatric Palliative Care: Integrating PPC and Emergency Medicine

Federico Pellegatta

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Fragile Evidence in a Complex Field: Rethinking Standards in Pediatric Palliative Care

Fragile Evidence in a Complex Field: Rethinking Standards in Pediatric Palliative Care

Federico Pellegatta

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Organ and Tissue Donation in Community-Based Pediatric Palliative Care: Challenges and Gaps

Organ and Tissue Donation in Community-Based Pediatric Palliative Care: Challenges and Gaps

Federico Pellegatta

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Tissue Donation as Meaning-Making in Pediatric End-of-Life Care: A Case Report

Tissue Donation as Meaning-Making in Pediatric End-of-Life Care: A Case Report

Federico Pellegatta

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Making Care Needs Visible in Pediatric Palliative Care: Exploring the Role of ICNP®

Making Care Needs Visible in Pediatric Palliative Care: Exploring the Role of ICNP®

Federico Pellegatta

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Shared Clinical Language Using ICNP® for Integrated Care Planning in Pediatric Palliative Care

Shared Clinical Language Using ICNP® for Integrated Care Planning in Pediatric Palliative Care

Federico Pellegatta

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From “Journal Club” to Learning Community: A Model for Education in Pediatric Palliative Care

From “Journal Club” to Learning Community: A Model for Education in Pediatric Palliative Care

Federico Pellegatta

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Learning Through Cases: Building Reflective Practice in Pediatric Palliative Care

Learning Through Cases: Building Reflective Practice in Pediatric Palliative Care

Federico Pellegatta

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Artificial Intelligence in Pediatric Palliative Care: Support, Delegation, and Responsibility

Artificial Intelligence in Pediatric Palliative Care: Support, Delegation, and Responsibility

Federico Pellegatta

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The Illusion of Presence? Artificial Intelligence and Relational Care in Pediatric Palliative Care

The Illusion of Presence? Artificial Intelligence and Relational Care in Pediatric Palliative Care

Federico Pellegatta

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Working Together: Professionals’ Views on Volunteers Integration in Paediatric Palliative Care

Working Together: Professionals’ Views on Volunteers Integration in Paediatric Palliative Care

Monica Pontremoli

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Exploring End-of-Life Care in Pediatric Intensive Care Units:A Pilot Survey of Health-Care Providers

Exploring End-of-Life Care in Pediatric Intensive Care Units:A Pilot Survey of Health-Care Providers

Pravin R R

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Passion and Concerns: Reflective practice in PPC education

Passion and Concerns: Reflective practice in PPC education

Manja Rančigaj Gajšek

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A 10-Year Evolution of Perinatal Palliative Care in a Tertiary Perinatology Center

A 10-Year Evolution of Perinatal Palliative Care in a Tertiary Perinatology Center

Jana Rellova

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Bereavement Preferences in Asian Home-Based Paediatric Palliative Care: A 14-Year Review

Bereavement Preferences in Asian Home-Based Paediatric Palliative Care: A 14-Year Review

Hui Ren

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Building Pediatric Palliative Care Capacity Through Tiered Education in Low-Resource Settings

Building Pediatric Palliative Care Capacity Through Tiered Education in Low-Resource Settings

Shahzadi Resham

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An Integrated Service Model for Delivering Pediatric Palliative Care in a Resource-Limited Setting

An Integrated Service Model for Delivering Pediatric Palliative Care in a Resource-Limited Setting

Shahzadi Resham

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The Impact of Shared Care Planning on Moral Distress in Paediatric Palliative Care

The Impact of Shared Care Planning on Moral Distress in Paediatric Palliative Care

Elena Ricci

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Savior Siblings: Hope, Ethics and Family Decision-Making in Pediatric Stem Cell Transplantation

Savior Siblings: Hope, Ethics and Family Decision-Making in Pediatric Stem Cell Transplantation

Maiara Rodrigues dos Santos

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From Implementation to Sustainability: Maintaining the Comfort Promise in Pediatric Oncology.

From Implementation to Sustainability: Maintaining the Comfort Promise in Pediatric Oncology.

Isabela Rodrigues Neves

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Balancing Analgesia and Safety: Fentanyl Use in Neonatal Epidermolysis Bullosa

Balancing Analgesia and Safety: Fentanyl Use in Neonatal Epidermolysis Bullosa

Ilse Ruysseveldt

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Flexible Use of Fentanyl for Procedural Pain in Children: Insights from Four Cases

Flexible Use of Fentanyl for Procedural Pain in Children: Insights from Four Cases

Ilse Ruysseveldt

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Implementation of a Home-Based Rescue Protocol in Paediatric Palliative Care

Implementation of a Home-Based Rescue Protocol in Paediatric Palliative Care

Ilse Ruysseveldt

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Approaches and Challenges to Communicating Poor Prognosis in Pediatric Advanced Cancer in LMICs

Approaches and Challenges to Communicating Poor Prognosis in Pediatric Advanced Cancer in LMICs

Marta Salek

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Gabapentin in children with complex healthcare needs: a retrospective analysis

Gabapentin in children with complex healthcare needs: a retrospective analysis

Annalisa Salerno

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Emotional Care Demands in Caring for a Child and Family at the End of Life in a Children’s Hospice

Emotional Care Demands in Caring for a Child and Family at the End of Life in a Children’s Hospice

Eva Santiago

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Communication and Maternal Meaning‑Making of Artificial Nutrition in Paediatric Palliative Care

Communication and Maternal Meaning‑Making of Artificial Nutrition in Paediatric Palliative Care

Anna Santini

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Establishment of a New Model of Community Pediatric Palliative Service

Establishment of a New Model of Community Pediatric Palliative Service

Oshrat Silberstein

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Childhood Cancer from Diagnosis to End-of-Life Care: Implications for Paediatric Palliative Care

Childhood Cancer from Diagnosis to End-of-Life Care: Implications for Paediatric Palliative Care

Sofia Silva

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Every minute counts – increased registration of deceased children in a national register

Every minute counts – increased registration of deceased children in a national register

Anna Sonestedt

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Beyond Translation: Adapting EPEC Pediatrics and Learner-Centred Education in the Czech Republic

Beyond Translation: Adapting EPEC Pediatrics and Learner-Centred Education in the Czech Republic

Zuzana Stanickova

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Building Compassionate and Ethically Sustainable PPC Research Cultures

Building Compassionate and Ethically Sustainable PPC Research Cultures

Maria Stiholt Otto

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Worldmaking from the edges and the gaps: (Re) Imagining Objectivity and Subjectivity in PPC Research

Worldmaking from the edges and the gaps: (Re) Imagining Objectivity and Subjectivity in PPC Research

Maria Stiholt Otto

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ShareHope: A Photo-narrative Approach to Understanding and Supporting Hope in Pediatric Oncology

ShareHope: A Photo-narrative Approach to Understanding and Supporting Hope in Pediatric Oncology

Allie Superdock

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From Concept to Care: Implementing Hungary’s first integrated Paediatric Palliative Care Programme

From Concept to Care: Implementing Hungary’s first integrated Paediatric Palliative Care Programme

Gabor Szarvas

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From Cultural Humility to Ethical Action: Nurses in Family-Centred Paediatric Palliative Care

From Cultural Humility to Ethical Action: Nurses in Family-Centred Paediatric Palliative Care

Regina Szylit

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Beyond Prognosis: Hope and Meaning-Making Among Families of Children with Edwards Syndrome

Beyond Prognosis: Hope and Meaning-Making Among Families of Children with Edwards Syndrome

Regina Szylit

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Referral to Neonatal Palliative Care in Hypoxic-Ischaemic Encephalopathy: A Five-Year Cohort Study

Referral to Neonatal Palliative Care in Hypoxic-Ischaemic Encephalopathy: A Five-Year Cohort Study

Daniela Teruzzi

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A Changing Landscape: Thirty Years of Family Narratives in Paediatric Spinal Muscular Atrophy

A Changing Landscape: Thirty Years of Family Narratives in Paediatric Spinal Muscular Atrophy

Srishruthi Thirumalai

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Factors influencing documentation and sharing of pediatric advance care planning outcomes

Factors influencing documentation and sharing of pediatric advance care planning outcomes

Sophie Tooten

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Recommendations on documentation and sharing of pediatric ACP outcomes: a modified Delphi study

Recommendations on documentation and sharing of pediatric ACP outcomes: a modified Delphi study

Sophie Tooten

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Feasibility of CSNAT-I Paediatric for identifying and addressing parents’ support needs in PPC

Feasibility of CSNAT-I Paediatric for identifying and addressing parents’ support needs in PPC

Gro Trae

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Hope4Kids: Holistic Oncological Palliative Care for Europe’s kids. A European Joint Action.

Hope4Kids: Holistic Oncological Palliative Care for Europe’s kids. A European Joint Action.

Rosa van Male

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Psychosocial Well-Being in Preschool Children Affected by Life Limiting Childhood Illness

Psychosocial Well-Being in Preschool Children Affected by Life Limiting Childhood Illness

Torun Vatne

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Supporting Young Siblings Through Play: A Pediatric Palliative Care Intervention

Supporting Young Siblings Through Play: A Pediatric Palliative Care Intervention

Torun Marie Vatne

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Early Implementation of Pediatric Palliative Care in Inherited Metabolic and Muscular Diseases

Early Implementation of Pediatric Palliative Care in Inherited Metabolic and Muscular Diseases

Jacopo Maria Venanzi

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The Value of Talking about Death & Dying Workshops for Children’s Health Professionals in the UK

The Value of Talking about Death & Dying Workshops for Children’s Health Professionals in the UK

Amy Volans

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Who was Providing What for Whom in UK Children’s Palliative Care Psychological Services in 2025

Who was Providing What for Whom in UK Children’s Palliative Care Psychological Services in 2025

Amy Volans

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Developing a Psychosocial Regional Managed Clinical Network for Children’s Palliative Care in the UK

Developing a Psychosocial Regional Managed Clinical Network for Children’s Palliative Care in the UK

Amy Volans

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Supporting the Multi-agency Network When a Child Dies: The Value of On-line Co-memorating Meetings.

Supporting the Multi-agency Network When a Child Dies: The Value of On-line Co-memorating Meetings.

Amy Volans

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The Child–Caregiver–Nurse Triad in Pediatric Palliative Care

The Child–Caregiver–Nurse Triad in Pediatric Palliative Care

Ledia Vrapi

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Catalyzing Compassion: Paediatric Palliative Care Global Academy Impact in Limited-Resource Settings

Catalyzing Compassion: Paediatric Palliative Care Global Academy Impact in Limited-Resource Settings

Alexandra Wang

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Too Little, Too Late? Timing of Referral to Specialist Paediatric Palliative Care

Too Little, Too Late? Timing of Referral to Specialist Paediatric Palliative Care

Michelle Ward

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Beyond End-of-Life: Complexity in a Hospital-Based Paediatric Palliative Care Service

Beyond End-of-Life: Complexity in a Hospital-Based Paediatric Palliative Care Service

Michelle Ward

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Parent and Health Professional Differing Priorities for Pediatric Palliative Care Quality Outcomes

Parent and Health Professional Differing Priorities for Pediatric Palliative Care Quality Outcomes

Kimberley Widger

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Voices First: An Anticipatory Communication Model

Voices First: An Anticipatory Communication Model

Rebecca Williams

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Ten years of educating professionals caring for children and youth with life-limiting conditions

Ten years of educating professionals caring for children and youth with life-limiting conditions

Anette Winger

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Use of Antenatal Symptom Management Plans for Families Known to Paediatric Palliative Care Services

Use of Antenatal Symptom Management Plans for Families Known to Paediatric Palliative Care Services

Lawrence Wright

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Say Their Names: Bereaved Parent Partners in Pediatric Palliative Care Education

Say Their Names: Bereaved Parent Partners in Pediatric Palliative Care Education

Vanessa Wrzesien

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How do children die? End-of-life circumstances in a Dutch tertiary pediatric population

How do children die? End-of-life circumstances in a Dutch tertiary pediatric population

Merve Yilmaz Erdas

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Who needs paediatric palliative care? A national multicenter EHR study

Who needs paediatric palliative care? A national multicenter EHR study

Merve Yilmaz Erdas

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Bone Fragility in Children with Medical Complexity: Predictors and Clinical Management

Bone Fragility in Children with Medical Complexity: Predictors and Clinical Management

Laura Zanatta

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