Speakers & Moderators

A

Avilés Martínez María, RN, PhD. Assistant Professor, Department of Nursing, Universidad Autónoma de Madrid, Spain

Arnaudo Filippo, multidisciplinary creative and disability rights activist who combines design, storytelling and humor to promote inclusion, challenge stereotypes, and foster accessible and socially inclusive communication, Italy

B

Bernadá Mercedes, MD, Quality of life and Pediatric Palliative Care Unit, Asociación Española; Associate Professor of Pediatrics Universidad de la República, School of Medicine, Montevideo, Uruguay

Boyacıoğlu Nur Elçin, Assoc. Prof., Psychiatric Nurse, Istanbul University-Cerrahpasa Health Science Faculty, İstanbul, Turkey

Benini Franca, Director of Paediatric Palliative Care – Pain Service Department of Women’s and Children’s Health, University of Padua, Professor of Pediatrics – Pediatric Palliative Care, University of Padua, Italy

Baker Justin N., MD, FAAP, FAAHPM, Chief, Division of Quality of Life and Pediatric Palliative Care, and Deborah E. Addicott John A. Kriewall and Elizabeth A. Haehl Family Endowed Professor of Quality of Life and Pediatric Palliative Care, Stanford School of Medicine and Stanford Medicine Children’s Health in Palo Alto, California, USA

C

Carter Brian S., MD, FAAP, Division of Palliative Care & Bioethics, Children’s Mercy Hospital; Professor of Pediatrics, Chair and Sirridge Endowed Professor of Medical Humanities & Bioethics, UMKC School of Medicine, Kansas City, USA

D

Doherty Megan, MD FRCPC (Pediatrics, Palliative Medicine) MMEd, Two Worlds Cancer Collaboration Foundation, Canada; Associate Professor, University of Ottawa, Canada

Dussel Veronica, MD, MPH, Assistant Investigator, Pediatric Palliative Care Research, Mass General Brigham for Children, Boston, MA, USA and Board of Directors, International Association of Hospice and Palliative Care (IAHPC)

Downing Julia, PhD, RGN. Chief Executive at International Children’s Palliative Care Network, UK

E

Embiruçu Lilia, MD, Palliative Care National Academy Brazil; Health Department of State of Bahia, Spiritual Department Care of Mont Serrat Hospital Bahia, Brazil

El Khoury Joe, MD, MPH, Head of Department, Department of Palliative Care, Centre Hospitalier Public d’Hauteville, France, and Education Coordinator, Balsam the Lebanese Center for Pallaitive Care, Lebanon

F

Fretland Ragnhild A, Clinical Psychologist, Department of Child and Adolescence Mental Health in Hospitals, Division of Paediatric and Adolescent Medicine, Oslo University Hospital, Oslo, Norway

Ferro Diana, PhD, ABAIM, MS – Predictive and Preventive Medicine, Research Unit Ospedale Pediatrico Bambino Gesù – Rome, Italy

Friedrichsdorf Stefan J., MD, FAAP, FAAHPM. Elisa and Marc Stad Professor in Pediatric Pain Medicine, Palliative Care and Integrative Medicine, University of California at San Francisco. UCSF Benioff Children’s Hospitals, USA

G

Garchakova Anna, Director of the Public Association “Charitable Children’s Hospice”, Minsk, Belarus; member of St. Jude, member of ICPCN, member of IAHPC

Garros Daniel, MD, University of Alberta, Clinical Professor of Pediatrics, Stollery Children’s Hospital Pediatric Intensive Care Unit staff; Quality & Safety Lead Edmonton, AB Canada

Goldman Ann , Paediatrician, Retired Consultant in Paediatric Palliative Care, Great Ormond Street Hospital for Children, London, UK

H

Hain Richard D. W., MB BS MSc MSt MD DPhil FRCP(Edin) FRCPCH Dip Pall Med PGCertEd FHEA, Consultant and Clinical Lead, Welsh Clinical Network in Paediatric Palliative Medicine, Children’s Hospital for Wales, Cardiff; Honorary Professor in Clinical Ethics, Swansea University; Theme Lead for Professionalism, Ethics and Law, Liverpool University School of Dentistry, Visiting Professor, University of South Wales, UK

Herbert Anthony R. , MBBS, B Med Sci, FRACP, FAChPM, Paediatric Palliative Care Service, Children’s Health Queensland Hospital and Health Service. Adjunct Associate Professor, School of Nursing, Queensland University of Technology, Brisbane, Australia

Harrop Emily, MBBS BSc DCH FRCPCH PhD Dip Pal Med (Paed), Consultant in Paediatric Palliative Care and Medical Director, Helen & Douglas House Honorary Consultant Oxford University Hospitals, UK

Hauer Julie, MD, FAAP, FAAHPM, Boston Children’s Hospital, Palliative Care and Complex Care, Harvard Medical School, Boston, USA

K

Kreicbergs Ulrika, RN, PhD, Louis Dundas Chair of Paediatric Palliative Care for Children and Young People, Great Ormond Street Institute of Child Health, University College London, United Kingdom

Kang Zhi Lin, Associate Consultant, Star PALS, HCA Hospice, Singapore

Koh Michelle, MD, Senior Consultant and Head of Service, Paediatric Palliative Care team, KK Women’s and Children’s Hospital, Singapore

M

Mancini Alexandra, National Lead Nurse for Neonatal Palliative Care, leading the National Neonatal Palliative Care Programme. Chelsea and Westminster NHSFT, True Colours Trust, CW+, London, England, UK

Meiring Michelle A. , MD, FCPaeds (SA), Head of Paediatric Palliative Care Division, University of Cape Town, South Africa

Morvant Alexis “Lexy”, MD, MA, FAAP, FAAHPM, Kriewall Haehl Director of Pediatric Palliative Care, Medical Director, QoLA Pediatric Palliative Care Division of Quality of Life and Pediatric Palliative Care, Clinical Associate Professor, Department of Pediatrics Stanford School of Medicine and Stanford Medicine Children’s Health Center for Academic Medicine, USA

Mendes Joana, Adjunt Professor Department of Pediatric and Child Health Nursing- School of Nursing of the University of Lisbon and researcher at the nursing research innovation and development Centre of LPortugal

N

Nespral Alejandro, Pediatric Palliative Care, Bariloche Zonal Hospital, Pediatric Service,Cultura Paliativa, CEO. Grief in Schools Project, General Coordinator, Argentina

O

Owens Judith, MD, MPH, FAAP, Pediatric Sleep Program, Boston Children’s Hospital. Professor of Neurology, Harvard Medical School, Boston Massachusetts, USA

P

Purol Nicholas, MSW, LICSW, lead clinical social worker, Social Work Fellowship Director, Director of Interdisciplinary Education, Pediatric Advanced Care Team (PACT), Boston Children’s Hospital and Dana-Farber Cancer Institute, Boston, USA

S

Siden Harold, MD, MHSc, Canuck Place Children’s Hospice and BC Children’s Hospital.  Clinical Professor, Division of Pediatric Palliative Medicine, Department of Pediatrics, University of British Columbia, Vancouver, Canada

T

Toro-Pérez Daniel, PhD, MS, Psychology Program Coordinator, Pediatric Palliative and Complex Care Unit, Hospital Sant Joan de Déu Barcelona, Spain

V

Vemuri Sidharth MBBS (Hons) BMedSci FRACP FACh PM PhD, Victorian Paediatric Pa lliative Care Program. Consultant in Paediatric Palliative Medicine, The Royal Children s Hospital Melbourne, and Clinician Scientist Fellow, Murdoch Children’s Research Institute, Australia

W

Wolfe Joanne, MD MPH, MGB Chair of Pediatrics at Massachusetts General Hospital and Brigham and Women’s Hospital and is the Charles Wilder Professor of Pediatrics at Harvard Medical School. Pediatric Palliative Care Clinician and co-leads the PPC-IDEA lab focused on easing suffering and promoting wellbeing in seriously ill children and their families USA

Z

Zandali Federica e Matteo, Lavinia’s parents who suffered from mucolipidosid type 2, Italy